Real Housewives of Orange County star Meghan King Edmonds is revealing news about her baby boy that most parents don’t want to hear. Her son, Hart, who was born in June 2018 with twin brother Hayes, was diagnosed with Periventricular Leukomalacia on both sides of his brain, a condition that involves the death of small areas of brain tissue around fluid-filled areas called ventricles.
In a new, blog post titled My Hart, Meghan broke the news about her son Hart, 13 months, saying he has “irreversible brain damage.”
“From the minute he was born I knew something was different with Hart,” Meghan begins her blog. “The nurses struggled to straighten his legs to measure his length. He suckled hard, shallow, and often until I bled and he spit up black.”
She continued, “I took him to get his lip and tongue tie released. All issues persisted. I took him to a chiropractor, cranial sacral therapy. I took him to a pediatric ophthalmologist when I noticed he couldn’t see his hands and his eyes stayed crossed longer than normal (update: he doesn’t have any vision issues and his strabismus is minor enough not to be addressed, just monitored).
“Well, I knew. I always knew. I just knew…,” she added.
After doctors told Meghan that her baby was fine, the mother of 3 fought for more tests, knowing in her heart something wasn’t right. And finally he was given an MRI. All this while Meghan was dealing with the news that her husband, Jim Edmonds had cheated on her.
“Three days later Hart’s neurologist called me. Hart has minor Periventricular Leukomalacia on both sides of his brain (namely the white matter), but more so on his right.,” Meghan revealed. “She said that this explains all of my concerns: the rigidity in his muscles, the (somewhat) delayed physical milestones, the lack of fluidity with arm and leg movements, the stiffness in joints, the weakness in his lower back, the somewhat favored use of his right side. She told me this mainly occurs in premies and since he was not a premie (he was born at 37 weeks gestation) she believes this damage somehow occurred “a couple months before he was born.” She explained that he is at risk for being diagnosed with Cerebral Palsy and will be monitored.”
“Hart has irreversible brain damage, it’s called PVL.,” she wrote. “Like I said, I already knew.
While Meghan had known something was wrong, her husband Jim found the news to be a shock. She enrolled Hart in Missouri First Steps program for therapy and called family in friends to break the news.
[RELATED: “Real Housewives of Orange County” Star Shannon Beador Receives $1.4 Million in Divorce Settlement]
“That night Jimmy and I went out to dinner for the first time in weeks,” she shared. “I explained to Jimmy how we are not somehow compromised or punished for having a child with special needs (whatever that may or may not mean!), we are BLESSED. I will go on about this another time but just know that I do not see his diagnosis as anything but a gift: we were chosen to take on this special person. I truly feel as if we’ve doubled down and won the underdog hand. Truly. This doesn’t mean his diagnosis isn’t a challenge… or a little bit sad, or that I don’t feel a little bit guilty. Because yes – just yes – to all of those things. I pray for a miracle and I grapple with how to navigate his life. Thirteen days after his diagnosis I finally put these thoughts to paper. This is a heavy challenge as a mother: where do we go from here? This is where: one foot in front of the other. God, you’re talking to me. I hear you. Let’s do this. All of it.”
Meghan also shares 2-year-old daughter Aspen with husband Jim. Our thoughts are with Meghan and family at this time.